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Videos
Web
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01:19
Rare Disease Patient Advocacy Day
784 views
•
12 years ago
U.S. Food and Drug Administration
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01:34
Connecting Rare Disease Patient Communities and Advocacy Groups
91 views
•
5 years ago
PCORI
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04:09
Rare Disease Advocacy
127 views
•
6 years ago
CheckRare
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11:16
The Varying Perspectives of the Rare Disease Patient Advocacy Community on RTT
146 views
•
4 years ago
ASGCT
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08:37
Rare Disease Advocacy and Research at the University of Notre Dame
27 views
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4 months ago
Notre Dame Science
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02:36
10 Tips for New Rare Disease Advocates from Current Ones
715 views
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5 years ago
National Organization for Rare Disorders (NORD)
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03:39
The Role of Advocacy in Rare Diseases
71 views
•
6 years ago
CheckRare
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06:31
NORD: 30 Years of Advocacy for the Rare Disease Community
568 views
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11 years ago
National Organization for Rare Disorders (NORD)
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05:01
Rocky River family share story of daughter's rare disease
595 views
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1 day ago
News 5 Cleveland
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02:23
Rare Disease Advocacy and the Rare Disease Film Festival
81 views
•
6 years ago
CheckRare
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01:52
NORD's Next Generation of Rare Disease Advocates: Megan Barron
1.1K views
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11 years ago
National Organization for Rare Disorders (NORD)
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02:26
Spreading awareness and support for rare disease
315 views
•
1 year ago
23 ABC News | KERO
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01:00:13
Webinar: Advocating for a rare disease
7.6K views
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6 years ago
kidneyfund
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01:28
The Importance of Advocacy Groups for Rare Disease Patients
64 views
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6 years ago
CheckRare
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03:10
Rare Disease Advocacy Groups
41 views
•
6 years ago
CheckRare
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32:39
Rare Disease Day: Ways to Get Involved and Raise Awareness
1.4K views
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5 years ago
National Organization for Rare Disorders (NORD)
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04:08
Advocacy Group Brings Attention To Rare Diseases And Disorders
187 views
•
6 years ago
KCAL News
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58:10
Empowering Rare Disease Patients Through Advocacy and Counseling: Part 1
52 views
•
1 year ago
National Press Foundation
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05:38
Advocacy in rare disease: Surveying the landscape (TEASER - Free Webinar)
38 views
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1 year ago
Fondation Ipsen
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53:06
2022 Rare Disease Week - How Data Can Power Rare Disease Advocacy
14 views
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2 years ago
EveryLife Foundation for Rare Diseases
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